Ethical Dilemma and Brain Injury

We mostly rely on our intuition and instinct telling us we are doing (or about to do) something unethical. Ethical dilemma and brain injury is not always so clear. What makes this so? Last week as an introduction to ethical dilemma and brain injury, the focus was on ethics and ethical dilemma. In that article I shared a powerful quote, from Rabbi Dr Milton Pine, that has started my thinking about about ethical dilemma and brain injury. This coincided with finding an article by Dr Geoffrey Scott entitled “Ethical Dilemmas” (Think, 1991). It was in deeply buried in my archives, and found during a clean out. (As an aside, that clean out showed me there is much to be learned from the old, and what is new, is not always that new!) Back to the article; Dr Scott was both a teacher of ethics, and the father of a son with brain injury. Like Dr Pine, he also eloquently described an ethical…

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‘E’ Is For Ethics and Ethical Dilemmas

  Have you come across real life ethical dilemmas around brain injury? Maybe you have found yourself facing an ethical challenge? This week I had been thinking a lot about an ethical dilemma posed at the end of a stunning presentation at a brain injury conference some time in the 1990's. The paper was presented by Rabbi Dr Milton Pine  describing his experience of brain injury. At the close of his presentation he said: "if you are going to make us live, don't bury us alive". This powerful statement has stuck in my mind since that time.  I believe it highlights an ethical dilemma around brain injury. The cost of emergency and acute care for a person, compared with what is provided for life long living, and community care. An ethical dilemma we could all  think more about. I then decided to focus on ethics and ethical dilemmas about brain injury for this article. Unfortunately when I started thinking, researching, writing, revising.…

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Emotions After Brain Injury and the ‘Goldilocks’ Model

Often the focus for a person living with brain injury is on managing the physical and cognitive effects, not noticing changes in emotions after brain injury. It is easy to overlook the emotional ups and downs that come with such a major change to your life. Each week I look forward to wonderful emails from people all over the world in response to these articles. One email I received this week prompted me to think about the many conversations I have had over the years, with people up against their own reactions, responses and emotions after brain injury, along with those of their family and friends. The letter (yes it was an email, but I like to think of them as letters) was about the struggle to understand, and live with the life changes, that come with brain injury. The emotional roller coaster. I am not talking about the emotional changes that happen because of damage to the brain.  I am talking…

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Frontal Lobe Damage: When the Leader Can’t Lead

Today, a look at what can happen when the work of the frontal lobe is interrupted or damaged. This builds on my attempt last week to simply explain what the frontal lobe does. How Does Frontal Lobe Damage Happen? Last week I mentioned a book I had found useful THE EXECUTIVE BRAIN: Frontal Lobes And The Civilized Mind by Dr Elkhonon Goldberg. In a Chapter entitled “When the Leader is Wounded” (yes your frontal lobe is the boss of the brain), he uses a military picture to describe how frontal lobe damage can happen. I will try and summarise what Dr Goldberg describes: If the leader is damaged, the soldiers (read 'soldiers' as 'other lobes of the brain') are without an organiser. The soldiers can’t sort out what needs to be done because they don't know what each other is doing, no-one is taking charge, and they can't do their job properly. If the links between the leader and the field are damaged…

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What a Frontal Lobe Will Do For You!

The frontal lobe gets a lot of attention when talking about brain injury. It deserves to, it is important. Whatever the cause of brain injury, the frontal lobe is also a part of the brain often damaged. This can have a significant impact on a person’s life. How Important is the Frontal Lobe?  "How come you get so much attention?"  "Who me?" asks the Frontal Lobe explaining "I deserve it, I am terribly important, just ask anybody who has trouble with me!"  "Why are you so special?  "I am the boss. You might call me the 'Fat Controller' (the Fat Controller is so important, he has his own Wiki Page). I manage most of what the brain does. I keep you from doing really silly things and I am responsible for that charming personality you have". Now that was my attempt at making anatomy entertaining! My very own frontal lobe is telling me that this approach may be inappropriate, insensitive, and lacking…

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Storytelling and Storylistening:Brain Injury Through Stories

Learning about brain injury through stories helps deepen our understanding of brain injury:[unordered_list style="green-dot"] the cognitive outcomes, the physical and behaviour changes, and the life changing impact of brain injury on each person. [/unordered_list] The Beginning I was driving my daughter to school recently, she was doing some last minute study for a test on electricity and wanted my help. I confessed to her, that most of what she was studying, I had no understanding of, and it all felt very confusing. She then explained what she had been learning, giving real life examples of the concepts in action; telling a story about electricity. It made it real and understandable for me. Thinking about this experience and the importance of stories coincided with a couple of weeks of finding all sorts of exciting stuff about brain injury. When I looked at the path I had taken, it began and ended with stories. I had learned more about the nature of brain injury…

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Disinhibition after Brain Injury – Tips and Strategies

Last week I talked about about disinhibition after brain injury; possible causes, and what you might see. Today, still focussed on disinhibition, I have collected a list of strategies that might be helpful. The tips and strategies below are grouped under a set of principles. Having a set of principles is like the foundation, or the pillars, upon which you can build good support. Four reminders before you make any changes:[ordered_list style="decimal"] Discuss strategies and ideas with the person you are supporting, their family and treating team, to decide what suits best. Start with strategies and changes the person is interested in. Try not to change too much, all at once. [/ordered_list] Think B -E- C- A- U- S- E BECAUSE is a set of principles that can help you build a list of actions to ensure you work successfully; with humanity and respect. They are the pillars that support and guide what you do. Today I am applying these principles to…

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Disinhibition after Brain Injury: Refreshing or Embarassing

When trying to understand disinhibition after brain injury, think about times you might have acted without thinking. Experiences you might have had  when you have said, or done something suddenly, without thinking. Then immediately wished you could take it back. People who know me well, would say I do it all the time! This is a simple demonstration of what “disinhibition” after brain injury is like. Usually we have a grown up voice in our head that tells us when not to do, or say something. When a person is disinhibited this voice is missing, or much quieter. There is no filter. Everyday words people might use to describe what they see might include:  tactless, exhibitionist,  show no shame, blunt,  rude and impolite, too honest, short fused. But it is part of the damage to the brain. On the other side: It can be quite refreshing to meet someone who says, and does things as they feel, someone who calls it as…

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Read more about the article Open Ears, Open Eyes, Open Mind, Closed Mouth: Supporting Family after Brain Injury – Part 3
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Open Ears, Open Eyes, Open Mind, Closed Mouth: Supporting Family after Brain Injury – Part 3

A starter kit for supporting family after brain injury. Here are four simple actions that you can practice to better support family after brain injury, with compassion and empathy. Over the past couple of posts I have talked about being alongside family after brain injury. Firstly the responses and reactions family members might experience and then about responding with empathy and compassion. How can you put this into practice? It can seem so overwhelming when you begin. Think Open Ears, Open Eyes, Open Mind, and Closed Mouth The following are some tips for how you can begin to offer relevant support to a family after brain injury: OPEN EARS Listen closely to what each family member is telling you about their own experience and the impact on their family after brain injury. Listen as they talk about their needs, and what you can do to best support them. Listen, and let the family know you are hearing and understanding them.  Acknowledge that…

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Read more about the article Family Support after Brain Injury: Empathy and Compassion – Part 2
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Family Support after Brain Injury: Empathy and Compassion – Part 2

How do we understand family support  after brain injury, when we are all different? Each of our families work differently, whether a family member has experienced a major trauma, such as brain injury, or not. Last week, the discussion was about the responses and reactions family might have when a family member has a brain injury. Understanding this, is a starting point to having a family sensitive approach to family support after brain injury. Now we can discuss how we provide family support after brain injury, when not only each family is different, brain injury is different in every person. Compassion and Empathy How to best support family after brain injury? Compassion and empathy, are great foundations. I believe both these words are very misunderstood in our world today, they seem to be seen as soft, or weak. We will talk more about them in the future. For now, in very simple terms: Compassion is well described in the principle “do unto…

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